Saturday, September 30, 2006

September 2006 At KKBJ

It was our first full month at KKBJ. The subjects you'll find this include: The Donut Hole, a urine test for mania, anxiety and bipolar disorder, sleeping problems and pills, Katee's meds and Charlie's meds.

I'm sure in October we'll be hearing more about Charlie and The Great Donut Hole Adventure. (Kathryn)

Thursday, September 28, 2006

Falling Into the Donut Hole

It may be time for a medicine change for Charlie.

His current mix works but we can't afford them. His meds are covered by a drug benefit through Medicare coverage. But now he's fallen into the Donut Hole. The hole is a gap in coverage that leaves Charlie to pay for medicine on his own.

Bottom line? If he chooses to stay on current meds we'll have to come up with about six hundred dollars in October and November and a couple of hundred in December but then for about ten little days in December, the rest of the year he'll pay $2 for generic drugs and $5 for all others.

The irony? He still has to pay the premiums on his drug coverage even though while he's in the hole he won' t be receive any benefit.

Tuesday, September 26, 2006

Clear Blue Line




Twilight Zone: The Movie came out in 1983 and contained four stories. In one a young child turns out to be a maniacal brat with bizarre powers. I sometimes feel like I'm one of those people in that particular storyline. My teeth grit and my cupped fingers land on my lips as I watch what's going on around me. What's going to happen next?

I watch my brother do carpentry work at Dad's house. He jumps from one project to another. Granted it's an old house and there's lots to do in this weekend he's dedicated to helping out. On the list: install a new shower stall, replace some bad flooring and hang doors. But why doesn't he stick with one project? Is he bipolar? No. He works in the construction business and is used to getting on with the next project while something is setting up or drying.

I watch Charlie install our new dishwasher. This leads to a plumbing project to replace the faucet, which leads to a major leak under the house. He's also been painting walls and ceilings at Dad's house.

Is this mania? Around the house projects are something he's not done in years. His old mix of Depakote and lithium left him hermitized on the couch.

I'm cringing at the edges of these new projects, chanting to myself. Please let it be feeling good, not mania.

Finally, I pull my fingers away from my lips and confront him as he crawls out from the house. "Are you manic?"

"No." Pause. "Maybe a little. I gotta go exchange my radio. It's not catching stations."

If it was alcohol on an alcoholic I feared I could just lean in for a kiss and a sniff. What I need is a home mania test I can buy at Walgreens. If I only had a stick for him to pee on. A clear blue line would be mania and no clear blue line would indicate just feeling good.

Thursday, September 21, 2006

anxiety.

A lot of people talk about mania, depression, and mixed states, but I've never really read anything about anxiety. It gets mentioned ("As my depression worsened, my anxiety heightened"), but no one writes about how terrifying anxiety can be. I don't really know anyone with an anxiety disorder, but I can certainly describe my own.

My anxiety is triggered by large crowds, loud noises, boy troubles, and school. It's my belief that anxiety attacks are even worse than the deepest depression. At least with depression there's nothing that you can really fear because you've already fallen to the bottom and there's nothing else that can happen. The energy it takes to commit suicide is too much to think of, so you just sleep or lay in bed for days, weeks, months. Sometimes years. Anxiety, however, is a different story.

When I have an anxiety attack, I feel like I've spun around in a circle too quickly. My heart is beating so fast that I feel like I'm having a heart attack. I get dizzy and scared, that I am going to tumble onto the ground and not be able to get back up. I feel like I'm dying. That feeling, the one that makes me feel like I'm dying, is not comparable to any other emotion that humans are capable of. Breathing is impossible because my lungs and windpipe aren't working properly, they have closed up because I'm getting ready to die and they know their job is done. My stomach feels like a hurricane has lost its way to land and instead has settled itself into my guts. My stomach is the sea and the hurricane winds are churning it, making a whirlpool inside of me. It's all I can do to keep from vomiting.

And I cannot stop crying. Like the rains from the hurricane in my stomach have traveled to my tear ducts, pouring onto my cheeks. Sometimes I cry so hard I cough up blood. Not much, but enough to scare me. The whole time my brain is clogged, cloudy. My only thought is that I am close to death. It will get worse depending on where I am. If I'm at home, I simply take a Xanax and it goes away. I am calm and okay, albeit a little sleepy. If I'm out somewhere crowded and have forgotten my Xanax, I immediately know that I need to go home. If I catch the attack early and get out of the situation it will go away by itself. If it's not caused by the situation, then I need that pill.

Thunderstorms cause me a tremendous amount of anxiety. Strong winds, loud thunder, and close lightning are all very disturbing to me. This might be because we live very, very close to the area in the US that tornadoes favor the most. Boy trouble is another cause of anxiety. If I'm arguing, if he hasn't called in a while, if I miss him a lot, if I'm simply being paranoid, I might not have an anxiety attack, but my stomach will hurt and I get slightly dizzy. Eating is out of the question. Anything I put in my mouth will taste and feel like carpet. It's a waste of food.

I can't understand why no one writes about this. Anxiety is such a horrible feeling, but it gets almost no attention. The only thing that's really mentioned is the controversy over the addictive nature of the benzodiazipines, and the passing stuff. I went on Xanax XR over the summer. It helped tremendously when my anxiety had gotten so bad that I couldn't go out in public. I don't really have that problem anymore, so now I only take my Xanax when I have an anxiety attack. It's kind of sad that no one talks about it because it's a bigger problem than everyone thinks, and I for one know exactly why.

Monday, September 18, 2006

Good Math Grade


Five weeks into the semester Katee gets a progress report from her math instructor at Bossier Parish Community College. The energy around her is light as she gets into the Blazer after class.

"I got my test back." She pulls a stapled stack of papers from a notebook. "I scored 93, an A."

She is truly surprised. So many self doubts linger because of all the ugly public (and private) school experiences she had.

"That's awesome. I knew you were smart." I tell her as the little truck chugs away from the sidewalk.

We celebrate with a lunch of chicken strips and Belgian waffles at IHOP. Even though it's a happy day there is a little piece of my heart that's sad. Why couldn't Katee's public school provide the accommodations she was legally entitled to so she could have had a normal high school education?

Thursday, September 14, 2006

sleeping pills are annoying.

So yeah, my Ambien is definitely needing to be upped. I can't sleep for shit unless I take a Xanax with the Ambien, but I don't really want to do that every night. And I don't have a psychiatrist's appointment until like November, which is pretty fucking lame. Hopefully the doctor's office can just call in a new prescription or something.

It's even worse when there's a lot of noise going on in the background. It was pretty bad when I stayed at Mike's on Monday. He has the smallest bed in the history of the world, which is just fab because he is 6'5" and built like a football player, and he snores like you wouldn't believe.

Blegh. I wish I could just sleep for 24 hours straight. That'd be pretty great.

Friday, September 08, 2006

Sleeping Problems

Funny how quickly things can change with bipolar disorder. Just a few days ago I reported Katee seemed to be doing well on her new mix of meds. She now says she's having trouble sleeping.

Her next appointment with the psychiatrist is in November so she can either struggle through it or we can make a phone call and leave a message.


Katee at Courtyard Coffee studying but enjoying the cooler weather and her new laptop computer.

Tuesday, September 05, 2006

Katee's Current Meds

Before Katee was diagnosed at age 14 with bipolar disorder she'd been diagnosed with depression and several other strange problems (that are each worthy of their own post). Sometimes it takes time to get the correct diagnosis.

She turns 19 at the end of October.

Her current mix of medications seem to be working:

Wellbutrin XL 300MG 1 tablet daily
Equetro 200MG 1 capsule twice daily
Xanax 1MG 1 tablet twice daily as needed
Ambien CR 12.5MG 1 tablet at night

Sunday, September 03, 2006

Ten-Days Worth

At the bookstore yesterday while slurping a blended coffee drink I leafed through the stack of Hurricane Katrina books that have been released in the last year. It put me in mind of emergency preparedness.

Topping my list of preparations as a caregiver of two people with bipolar disorder was all the medicines needed to keep them stable.

The experts say we should have a ten-day supply of medicines ready at any time, which is easy enough unless you're at the end of the bottle with maybe five days left and the insurance company won't let you refill the prescription unless you want to pay the full cost of the pills.

One approach is to have a separate ten-day supply of meds sitting around. Just make sure you rotate them regularly. If necessary, you can request from your physician an extra prescription for just those ten days. For us that would be costly because of how quickly we seem to under go prescription changes.

So here's my plan:

1. Use a national pharmacy. Earlier this year Charlie used Walgreens because it was just around the corner. Katee opted for Target because of their cool red bottles. They both now get their prescriptions from Walgreens. With a big chain there are plenty of places to get medicine.

2. Simplify the refills. Because of personal budgeting we buy meds at the first of the month or the middle of the month. Use a chart or calendar so you don't get down to the last day before phoning in refills. Try to never drop below three-days of pills.

3. Keep the bottles.
We use weekly/daily pill minders but we also keep the bottles so if all else fails we have that original information. You could make copies of the prescriptions but I'm not that organized.

4. Know how to store your medication.
Several years ago while vacationing in New Orleans we left Charlie's meds in his suitcase. In the baking heat of the car's interior the soft gels melted together. After that we kept them in the ice chest but the container filled with water from the melted ice and more meds were ruined. Since then we always double wrap them before they go into the cooler. If all else fails I tote them around in my purse because I don't stay out in the heat for long periods of time (needless to say I can't get away with using a fanny pack and as fashion conscious Katee says "Why would you want to?").

5. Keep meds in one location.
This one we need to work on. Katee's are scattered around her room. Charlie keeps the bottles in a little plastic bucket in the china cabinet and his pill minder is next to the coffee maker. I'd like to have them together so they can be scooped up quickly.

However if all else fails, as a very basic plan for personal emergency medicine preparedness, never have less than a three-day supply available and always keep the original bottles.

Saturday, September 02, 2006

Charlie's Current Meds




When I'm looking for information about people and how they are living with bipolar disorder I always like to know what meds are working for them.

If you've read our blog at http://crazyinshreveport.blogspot.com/
you know a little about Charlie. He's the father and husband in our family. He is 55 years old and was first diagnosed with bipolar in 1993.

He's currently taking:

Effexor XR 75MG 1 capsule daily
Wellbutrin XL 300MG 1 tablet daily
Clonazepam 0.5MG 3 tablets daily
Equetro 200MG 2 capsules twice daily
Trazodone 300MG 1 tablet at bedtime for sleep
Mirapex 0.5MG 1 tablet at bedtime

Of course his meds have changed many times over the years. This is what happens to be working for him at the present time.

About the above photo: Charlie is not making that funny face because of all his meds. The picture was taken in the Victoria's Secret store during their semi-annual sale this summer. He's making a strange face because he didn't want to know what kind of underwear his daughter wanted to buy. Right after I snapped the picture an employee came up and fussed at us for taking pictures in the store, like I was gonna steal their designs or something.